Whether you've just been diagnosed with Granulomatosis with Polyangiitis (GPA) or Microscopic Polyangiitis (MPA) or you've been living with either one of these diseases for a while, you know how frustrating and confusing living with a chronic disease can be at times. While there is currently no cure, there are treatments available to help control these diseases.
Along your journey, you may see many different types of doctors to manage the different parts of your body that are affected by your disease. It can seem overwhelming at times. How can you keep all of these doctors on the same page? Well, it's important that you take an active role in making sure that your doctors are talking with each other and coordinating treatment plans.
Here are some tips to help you:
- Keep a detailed list that includes doctors' contact information
- Create an ongoing dialog with your doctors
- Take notes at each doctor appointment and share the information with your other specialists
- Alert your doctors of any new symptoms or side effects you may be experiencing or if your symptoms or side effects have changed in any way
- Be sure to ask questions if you don't understand something
These are just a few tips. To learn more about how you can be your own advocate and talk with your doctor about your disease and treatment options, click on the links below.
Being Your Own Health Advocate
Talking With Your Doctor
Getting Additional Support